Referrals to RedArc for neurodiverse conditions such as ADHD, Autism, Dyslexia and Dyspraxia, have more than trebled over the past five years, with much of the increase driven by younger generations.
With referrals made via their parents, Gen Alpha accounts for over a third (36%) of all neurodiversity support provided by the nurse-led organisation. Gen Z accounts for a further 26%.
However, neurodiversity is far from just an issue for younger generations. Millennials and Gen X each account for 18% of RedArc’s neurodiversity support.*
Christine Husbands, commercial consultant at RedArc, said: “The increase in referrals do not necessarily mean that neurodiversity itself is becoming more prevalent but it does reflect a significant increase in awareness and understanding compared with even five years ago, alongside a growing desire among individuals and families to seek a formal diagnosis. However, we are seeing a significant number of adults who may have gone undiagnosed earlier in life, or who are now recognising that they need more support than they have previously been able to access.”
Diagnosis only part of the journey
With both the NHS and education system under considerable pressure, individuals and families can face lengthy waits for assessment and diagnosis, during which time they may be struggling to understand their own or their child’s needs, get appropriate support at school and also identify what help is available.
Individuals who suspect they may be neurodivergent, and families supporting neurodivergent children, need support before, during and after diagnosis.
It’s important to remember that diagnosis is only part of the journey. Once a diagnosis has been received, individuals and families may face further waits to put appropriate support in place, access specialist services or, where appropriate, obtain medication. Having someone to help them navigate these different stages can make, what is often a complex process, much easier to manage.
Support available
Support for neurodiversity should ideally be wide-ranging and delivered by expert clinicians who fully understand the diverse range of conditions that fall under this umbrella term.
In RedArc’s experience, the kind of support individuals and families often need includes help to secure funding for assessments, advice on whether an assessment will be recognised by relevant third parties, help understanding NICE guidelines for diagnosing and managing conditions, signposting to specialist local and national charities, arranging occupational therapy and specialist counselling, and practical advice on managing day-to-day challenges around work, school and sleep. In addition to these services, RedArc also frequently makes people aware of the NHS Right to Choose, an individual’s legal right to choose which NHS provider carries out their assessment.
Christine Husbands continued: “Whether someone suspects they may be neurodivergent themselves or is supporting a loved one waiting for assessment, diagnosis or appropriate help, it can be a very long and difficult path to tread. Having the right support throughout that journey can be a lifeline for everyone concerned.”